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February 2, 2012

Genomics News
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» How to do a literature search outside of academia

Updated: February 11, 2013 Following graduation, I have found it useful for my personal research and professional development to have continued access to ‘library and information science’ online databases.  Although I no longer have access through Loughborough University where I studied, and … Continue reading

August 18, 2008

Genomics News
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» Deafness and Genetics: What do deaf people want?

Wales Gene Park have another event planned that will be looking at genetics from the perspectives of the D/deaf community and those who are heard of hearing (For info on the previous event please see blog ‘Deaf Kids: Who Decides?’). At the workshop on Sept 18th results from a national research project ‘Deaf individuals’ understanding and perception of genetics and their needs from a genetic counselling service.’ will be disseminated and discussion around how to develop genetic counselling services for deaf people and their families will take place. Those attending will be invited to vote (electronically) on a number of questions. BSL interpretation will be available.

The workshop will be specifically targeted towards: 1) members of the public (deaf, hard of hearing, culturally Deaf adults) 2) representatives from various organisations/charities for d/Deaf and hard of hearing people, 3) representatives from the Council for the Advancement of Communication with Deaf People and other organisations involved with interpreting 4) health professionals (genetic counsellors, geneticists, paediatric audiologists, ENT surgeons, audiological scientists, community paediatricians – i.e. people who refer to genetic counselling and see families with deafness) 5) genetic service purchasers and heads of clinical genetics departments 6) deaf studies academics (social scientists, deaf studies researchers, health psychologists working in the field of deafness)

Information is available below: Workshop flyer Provisional programme Workshop overview

To reserve a free place please contact Angela at burgessam@cf.ac.uk or 029 2068 2140 (voice or via TypeTalk)

July 8, 2008

Genomics News
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» Cancer Genetics open day

Thanks to our very own Rachel Iredale and her colleagues at the All Wales Medical Genetics Service for the opportunity to attend the Cancer Genetics Open Day on Saturday. The event coincided with the 60th Birthday of the NHS and everyone who has had contact with the cancer genetics service in Wales received an invite. Despite the rain (and boy did it throw it down at times) the day was a great success with I’m told, more than 180 attending. In addition to presentations there were a number of stands providing information about the work of AWMGS and others organisations including Tenovus, Macmillan, Maggie’s Centres, Wales Gene Park and of course our very own Telling Stories. Certainly the response we had to our work continues to be very positive with those attending adamant that doctors and nurses working outside the specialty also need to know about genetics. Without comprehension of the basic principles, individuals will not get referred and other, at risk family members may not be identified. There is a second event in North Wales on 15 November. Information is available here

» Calling all users of genetic services in Wales...

An event at the University Hospital of Wales (Cardiff) on November 21, will be looking to find out what people think are the most important consequences of using genetic services. If you or your family has been referred to the All Wales Medical Genetics Service or you provide support to those who have been referred, then this day is for you. More information is available from the flyer below. Findings from the day will be informing the PhD work of HESAS student Christalla Pithara.

Flyer

June 30, 2008

Genomics News
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» GAMY on the radio

GAMY was on Science Cafe on BBC Radio Wales last week. One of our participants has captured the audio and made it into a video by incorporating both pictures of the project and images of genetics she has found online and put it on MySpace. Radio Interview
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