Telling Stories Understanding Real Life Genetics has expanded to incorporate educational content for doctors. Initially developed for nurses, midwives and health visitors, the stories on the website – which are from individuals with, or at risk of a genetic condition, healthcare professionals, family members or carers – have now been mapped to learning outcomes in genetics for General Practitioners and Medical Undergraduate Students with support from the Wales Postgraduate Deanery for Medical and Dental Education at Cardiff University.
In addition to this new content, the recently revised nursing competences in genetics (Fit for Practice in the Genetics/Genomics Era: A revised competence based framework for nurse education; Kirk et al Preliminary Report, April 2010), which were reviewed and updated last year by a team of experts led by Professor Maggie Kirk (Leader Genomics Policy Unit, HeSAS, and Lead Professional Specialist for Nursing Professions at the NHS National Genetics Education & Development Centre), are now available on the Telling Stories website.
Three new stories have also been published this month; the first is from a nurse, Ruth, specialising in the genetic condition Niemann-Pick disease, the second from a storyteller, Amelia, who describes her expereinces of living with the genetic condition Neurofibromatosis, and the third from Jenny, who describes what it is like to live with two different inherited conditions, facioscapulohumeral (FSH) muscular dystrophy and maturity-onset diabetes in the young (MODY).
New video clips are also available to accompany David’s story about living with the rare genetic condition Von Hippel Lindau.
For enquiries or more information on Telling Stories, please email firstname.lastname@example.org