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August 18, 2008

Genomics News
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» Deafness and Genetics: What do deaf people want?

Wales Gene Park have another event planned that will be looking at genetics from the perspectives of the D/deaf community and those who are heard of hearing (For info on the previous event please see blog ‘Deaf Kids: Who Decides?’). At the workshop on Sept 18th results from a national research project ‘Deaf individuals’ understanding and perception of genetics and their needs from a genetic counselling service.’ will be disseminated and discussion around how to develop genetic counselling services for deaf people and their families will take place. Those attending will be invited to vote (electronically) on a number of questions. BSL interpretation will be available.

The workshop will be specifically targeted towards: 1) members of the public (deaf, hard of hearing, culturally Deaf adults) 2) representatives from various organisations/charities for d/Deaf and hard of hearing people, 3) representatives from the Council for the Advancement of Communication with Deaf People and other organisations involved with interpreting 4) health professionals (genetic counsellors, geneticists, paediatric audiologists, ENT surgeons, audiological scientists, community paediatricians – i.e. people who refer to genetic counselling and see families with deafness) 5) genetic service purchasers and heads of clinical genetics departments 6) deaf studies academics (social scientists, deaf studies researchers, health psychologists working in the field of deafness)

Information is available below: Workshop flyer Provisional programme Workshop overview

To reserve a free place please contact Angela at burgessam@cf.ac.uk or 029 2068 2140 (voice or via TypeTalk)

July 8, 2008

Genomics News
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» Cancer Genetics open day

Thanks to our very own Rachel Iredale and her colleagues at the All Wales Medical Genetics Service for the opportunity to attend the Cancer Genetics Open Day on Saturday. The event coincided with the 60th Birthday of the NHS and everyone who has had contact with the cancer genetics service in Wales received an invite. Despite the rain (and boy did it throw it down at times) the day was a great success with I’m told, more than 180 attending. In addition to presentations there were a number of stands providing information about the work of AWMGS and others organisations including Tenovus, Macmillan, Maggie’s Centres, Wales Gene Park and of course our very own Telling Stories. Certainly the response we had to our work continues to be very positive with those attending adamant that doctors and nurses working outside the specialty also need to know about genetics. Without comprehension of the basic principles, individuals will not get referred and other, at risk family members may not be identified. There is a second event in North Wales on 15 November. Information is available here

July 7, 2008

Genomics News
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» Looking to develop your research career??

The Genomics Policy Unit is one of the five research units that make up the Centre for Research & Innovation in Care Sciences. CRICS currently has a full time MPhil studentship (two year bursary and waiver of ‘home’ tuition fees) available in topics compatible with its key research areas. Two such current topics are:

*Measuring outcomes in health professional genetics education (including the development/application of psychometric scales) *Clinical simulation in nurse education, developing real skills for practice

The quote in the previous blog referred to us as ‘a highly motivated and successful team’....and we are. If you’re interested in improving professional practice through genetics education then this studentship could be a great start for your research career.

Applicants should possess demonstrable interest in the relevant research within the Faculty, together with a 2.1 honours degree or above from a UK University, CNAA or equivalent and, if appropriate Grade 7 or above IELTS. Potential applicants should discuss their proposals in advance of applying, in the first instance with the Faculty Research Training Coordinator, Dr Gina Dolan

Applications by application form including 2,000 word proposal obtainable from: Karen Roberts, Research Administrator, Department of Health, Sport and Science, University of Glamorgan, Glyntaf, Pontypridd CF37 1DL. Tel: 01443 483158 Ext: 3158 Web link

Or download from www.glam.ac.uk/apply marking clearly that you wish to apply for a studentship at the Faculty of Health, Sport and Science.

The closing date for the CRICS studentship applications is 31st July 2008.

June 30, 2008

Genomics News
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» Familial Breast Cancer Study Day

The Nowgen Centre for Genetics in Healthcare (Manchester) is running a Familial Breast Cancer Study Day next month (18 July). This training day focuses on the role of primary and secondary care in delivering familial breast cancer services as outlined by NICE guidance and will include an update on mammographic screening and MRI, preventative surgery, risk estimation and the role of primary care in the management of those ‘at risk’. The full programme is available below. For more information contact the events team: T: 0161 276 5956 email: bookings@nowgen.org.uk Or “book online”: www.nowgen.org.uk/events

Flyer

Programme

May 12, 2008

Genomics News
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» Deanery day provides food for thought....

(...and very nice pastries during coffee!) Along with a number of colleagues form the NHS National Genetics Education and Development Centre, Maggie and I attended a conference last week hosted by the West Midland’s Deanery (responsible for the management and delivery of postgraduate medical education, CPD of all doctors and dentists, and also responsible for trainers, educational supervisors and educational leaders, their training needs and educational development).

‘Education, Professionalism and Outcomes’ was a great day with a broad variety of topics covered. Presentations from the CIPeL CETL Coventry (to you and me that’s Centre for Inter-Professional e-Learning which is a Centre for Excellence in Teaching and Learning) provided more food for thought around the delivery of good e-based education. We held a workshop in the afternoon looking at the use of stories in health professional education and were delighted that so many participants identified story based projects that they now want to carry out and integrate into their teaching. This was followed by another workshop facilitated by Annette Roebuck and colleagues that challenged us as participants to think about the way in which we communicate. We tried to get inside the head of an advertiser(!) to describe what we could see in an advert and were then graded by a service user on how well (or not) we had done.

March 31, 2008

Genomics News
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» Grief, secrecy, guilt and joy

Webcast – open to all. On Thursday April 10th 15.00 – 16.00hrs (British Summer Time) the University of Plymouth will present a webcast on the topic: Impact of a genetic condition on the family: grief, secrecy guilt and joy.

Heather Skirton (who we work a great deal with us here at the GPU) will facilitate. Heather is a Reader in Health Genetics and Deputy Head for Research, Innovation and Enterprise in the School of Nursing and Community Studies. She is a visiting Prof at Glamorgan, a Past President of the International Society of Nurses in Genetics and currently Co-Chair of the European Network of Genetic Nurses and Counsellors.

During the webcast, work will be presented on the way individuals and families react and cope when a person in the family is diagnosed with a genetic condition or family members are at risk. This is relevant to the majority of health and social care professionals, who will at some time care for individuals with a genetic condition in the course of their work in primary, secondary, tertiary and community settings.

To participate, go to www.plymouth.ac.uk/health/webcasts and click on the relevant orange box. You should type in your firstname and lastname (eg rayjones) as your username and then tick the guest box (no password needed). You must have a computer with broadband Internet connection that can play sound (speakers or headphones). No microphone is needed, your participation will be via typing into a ‘chat room’.